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Belgian sickle cell anemia registry

. A database was set up in Belgium to collect clinical and laboratory data including parental phenotype, diagnostic technique (neonatal screening or not), major clinical events (episodes of dactylitis, acute chest syndrome, severe anemia, infection, etc), number and duration of required hospitalizations, and treatment used.
The objectives:
To learn about characteristics of this population
To create the connection between practionners
(general, emergency and specialist practionners)
Unambigous information
Personalized contact
Research projects
State-of-the art, Guidelines
Information diffusion ( associations, authority)
Tool for educational projects
To serve of structure (framework) for other chronical pathologies

FieldValue
Modified
2020-08-01
Release Date
2018-08-14
Identifier
1cb3cc86-7655-471f-ac55-c47ba778ff97
License
Public Access Level
Public