The BNMDR was established in 2008. It is financed by the RIZIV-INAMI, but its content is managed by Sciensano, together with the neuromuscular reference centers. The objectives of the registry are to conduct scientific research (epidemiological, clinical, etiologic, ...) in the field of the neuromuscular diseases (NMDs), to support and improve health services given to NMD patients, and to guide the RIZIV-INAMI in providing appropriate care for those patients. It also facilitates patient recruitment for clinical trials.
Data and Resources
- Belgian Neuromuscular Diseases Registry (BNMDR)json
Machine-readable representation of this dataset.
|Release Date|| |
|Public Access Level|| |