- "Béatrice Gulbis"
- Registration projects in health and health care
Registration projects in health and health care
. A database was set up in Belgium to collect clinical and laboratory data including parental phenotype, diagnostic technique (neonatal screening or not), major clinical events (episodes of dactylitis, acute chest syndrome, severe anemia, infection, etc), number and duration of required hospitalizations, and treatment used.
To learn about characteristics of this population
To create the connection between practionners
(general, emergency and specialist practionners)